Hypoxic Ischemic Encephalopathy (HIE) occurs in an estimated 2-3 live births per 1,000 and also into childhood. Outcomes vary from unaffected to loss of life.
Hope for HIE was founded by three HIE moms who met online in 2010. Since then, Hope for HIE has evolved into a confirmed 501c3 nonprofit, and the go-to resource for families impacted by HIE, as well as a leading resource for medical professionals, researchers and organizations interested in HIE and related topics. Over 5,200 families from all around the world utilize the organizations online support forums.
With leadership from the Board of Directors, and support from volunteers and donors around the world, this volunteer-run non-profit carries out a variety of activities focused on providing support to families affected by HIE, as well as educating and collaborating with medical providers, other support organizations and the general public.
Hope for HIE’s support network provides opportunities to connect with peers, share information, ask questions, celebrate milestones, grieve setbacks/losses and more.
Hope for HIE organizes in-person parent/family retreats, provides in-depth support to newly diagnosed families, along with families experiencing hospitalizations and loss, and promotes awareness through World HIE Awareness Month (April) and Remembrance Day (April 20th).
Visit HopeforHIE.org or Facebook to learn more.